Questions to Ask Your Doctor About Endometriosis

Specific questions for every stage of your endometriosis journey—diagnosis, treatment, surgery, and self-advocacy. Be prepared for productive appointments.

One of the biggest frustrations for endometriosis patients is feeling unheard or dismissed during medical appointments. Having the right questions prepared can transform a frustrating 15-minute appointment into a productive conversation that moves your care forward. This guide provides specific, evidence-informed questions organized by the stage of your diagnostic and treatment journey.

Questions for Your First Appointment

If you suspect endometriosis but haven't been evaluated yet, these questions help establish that your symptoms warrant investigation:

  • I've been tracking my symptoms for [X months]. Based on what I'm describing, could this be endometriosis?
  • What diagnostic tests would you recommend to investigate my symptoms?
  • Do you have experience specifically with endometriosis patients?
  • What is your approach to endometriosis—do you prefer medical management, surgery, or a combination?
  • If initial tests are normal, what would the next steps be? (A normal ultrasound doesn't rule out endometriosis)
  • Can you refer me to a specialist if needed?

Questions About Diagnostic Testing

If your doctor recommends tests or imaging, ask these questions to understand the process:

  • What specifically are you looking for with this test?
  • If the test is normal, does that mean I don't have endometriosis?
  • Do you recommend a specialist sonographer experienced in endometriosis imaging?
  • Would an MRI provide additional information in my case?
  • Should I get my AMH levels tested to assess my ovarian reserve?
  • What are the pros and cons of pursuing laparoscopic diagnosis vs. clinical diagnosis?

Questions About Treatment Options

When discussing treatment, these questions help you understand all your options and make informed choices:

  • What are ALL my treatment options, and what are the pros and cons of each?
  • How will this treatment affect my fertility, both now and in the future?
  • What are the expected side effects, and how are they managed?
  • How long until I can expect to see improvement?
  • What happens if this treatment doesn't work—what's the next step?
  • Should I consider fertility preservation before starting treatment?
  • Is there a clinical trial I might be eligible for?

Questions About Surgery

If surgery is recommended, these questions help you assess whether you're in the right hands:

  • Do you perform excision or ablation? (Excision is the gold standard)
  • How many endometriosis excision surgeries do you perform per year?
  • What is your approach to endometriomas—do you prioritize preserving ovarian tissue?
  • Will you treat all disease found during surgery, including on the bowel or bladder?
  • What are the risks specific to my case?
  • What is the expected recovery time, and when can I return to normal activities?
  • What is the recurrence rate with your surgical approach?

Questions About Living with Endometriosis

Long-term management is key. These questions help you build a sustainable care plan:

  • How often should I have follow-up appointments?
  • What symptoms should prompt me to come in sooner?
  • Can you recommend a pelvic floor physiotherapist?
  • Are there dietary or lifestyle changes that might help my specific symptoms?
  • Can you recommend endometriosis support resources or patient groups?
  • How should we monitor my condition over time?
  • When should we reassess my treatment plan?

If You Feel Dismissed

Unfortunately, many endometriosis patients experience medical dismissal. If this happens, you have options:

  • Ask: 'Can you please document in my medical record that you are declining to investigate endometriosis and your clinical reasoning?'
  • State: 'I understand this may seem like normal period pain, but it is significantly affecting my quality of life and I would like it investigated further.'
  • Request a referral to a specialist: 'I would like to be referred to a gynecologist with expertise in endometriosis.'
  • Seek a second opinion—this is your right and a reasonable step
  • Contact an endometriosis advocacy organization for help finding knowledgeable providers

You are the expert on your own body. If something feels wrong, persist. Many endometriosis patients report that getting a diagnosis required advocating firmly for themselves.

Key takeaways

  • Prepare your questions in advance and bring them to your appointment in writing
  • Bring your symptom diary—data is harder to dismiss than descriptions alone
  • Ask about your doctor's specific experience with endometriosis
  • If you feel dismissed, ask for documentation and seek a second opinion
  • You have the right to be heard and to receive thorough investigation of your symptoms

Frequently asked questions

Should I bring someone to my appointment?

Yes, if possible. Having a partner, friend, or family member present can help you remember information, provide emotional support, and serve as a witness if you feel your concerns aren't being taken seriously.

How do I find an endometriosis specialist?

Search directories maintained by organizations like the Endometriosis Foundation of America, Nancy's Nook (Facebook group with vetted specialist lists), or your country's endometriosis association. Look for surgeons who specialize in excision surgery.

What if my doctor doesn't believe in endometriosis?

Find a new doctor. Endometriosis is a well-established medical condition affecting 190+ million people worldwide. Any provider who dismisses it is not providing evidence-based care. You deserve better.